The Eating Disorders Genetics Initiative (EDGI), led by the National Institute for Health Research (NIHR) Mental Health BioResource (part of the NIHR BioResource), researchers at King’s College London and Beat, the UK’s eating disorder charity, is a project set up to support studies exploring risk factors for eating disorders.

Eating disorders are severe psychiatric illnesses and are associated with one of the highest mortality rates within mental health. Research carried out through EDGI aims to better understand anorexia nervosa, bulimia nervosa, binge-eating disorder, and any other eating disorders in order to improve treatments and help current and future patients and service users.

We invite you to take part!

To take part in EDGI, you must:

  • Have experienced symptoms of anorexia nervosa, bulimia nervosa, binge-eating disorder or any other eating disorder.
  • Be aged 16 or over
  • Live in England

There are 4 simple steps to signing up to EDGI:

  1. Register for the website and read the information sheet
  2. Provide consent
  3. Complete a ~30 minute questionnaire to see if you are eligible
  4. Send a saliva DNA sample through the post

By signing up to EDGI, you will be able to see information on the website about a number of optional questionnaires or other research studies that are being carried out. You will be able to choose to take part in these questionnaires and/or studies should you wish to.

We would like to emphasise that you can stop taking part in EDGI at any time.

Need more information?

If you would like more information about the study before taking part, please click the “Download Info Sheet” button below to download our full Participant Information Sheet.

You can also go to our FAQ page to see some frequently asked questions about the study.

If you still have unanswered questions about EDGI or would like to speak to a member of our team, you can find all our contact details here. Please leave us a message via phone, email, or our “Send a Message” form and a member of our team will get back to you as soon as possible!


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Want to keep up to date with EDGI and the important research being done by our team? Follow us on Facebook, Twitter and Instagram!

Help us spread the word by sharing your participation or encouraging friends or family to get involved.

All data use is strictly within the terms of the Data Protection Act 2018.

Thank you for signing up to the Eating Disorders Genetics Initiative!