Am I eligible to take part?

Can I still take part if I haven’t received a diagnosis or treatment?

Yes, you are still eligible to take part if you have not received a diagnosis or treatment. Whilst we are encouraging those who have received these diagnoses to sign-up, we appreciate that not everyone may have received a diagnosis for a number of reasons. The sign-up questionnaire is designed to assess your eligibility to take part based on your answers to the survey.

If you are keen to take part we recommend that you complete the sign-up questionnaire and if you are eligible we will send you a DNA kit in the post.

Can I take part if I don’t live in England?

We are currently only recruiting participants living in England. We hope to expand further to the UK in the future. Unfortunately, if you live outside the UK you are not eligible to participate. We appreciate your support of EDGI!

I’m under 16, can I join the study?

Thank you for your interest in taking part in EDGI. Unfortunately, you will not be able to join the study if you are under the age of 16. If you would like to take part in the NIHR BioResource, you will be able to do so with parental/guardian consent. Please contact the EDGI team at edgi@kcl.ac.uk for more information.


Please contact our research team here if you have any further questions about eligibility.