I have read the information sheet, but how do I get to the consent form?
There is a downloadable version of the information sheet and there is a click through version. In order to get to the consent form, you first have to click through all the pages of the information sheet on the website. If you go to your Account (click “My Account” in the upper right hand corner) and scroll down past your name and address information, there is a blue section that says “My Sign Up”.
There you can click the “Read Information Sheet” button that offers the click through version. This will take you to the first page of the information sheet. If you keep clicking continue, you will eventually reach the consent process and then the survey.
I would like to re-read the information sheet or watch the animation video again, where can I find this?
You can find both the consent animation and the click-through information sheet by clicking here. You can also find these by clicking ‘Information Sheet’ at the bottom of the ‘My Account’ page.
Can I change my mind about taking part?
Taking part is entirely voluntary and you can change your mind at any time. You do not need to give a reason. If you would like to withdraw from the project, we would ask you to contact us by emailing firstname.lastname@example.org or calling on 020 7848 1639 or FREEPHONE 0800 917 6016 so we can register your withdrawal on our systems and get any feedback you may have of using EDGI.
If you request it, we will remove your data from our electronic databases. Details of your initial consent and the withdrawal process will be maintained along with your name and date of birth, in accordance with GDPR. You can also choose whether you would like your saliva/DNA sample to remain as an anonymised sample in the BioResource or whether you would like it to be destroyed.
How do I provide a saliva sample?
Once you have completed your questionnaire, you will be sent a saliva sample kit in the post to the address you provided. This kit will include a freepost envelope so you can return the sample.
For more information about producing a saliva sample, please see our saliva instructions leaflet here: EDGI Saliva Instructions Leaflet
Can I read the participant information sheet before I agree to take part?
Anyone interested in taking part in EDGI must read the participant information sheet before consenting to join this study. Please find a downloadable pdf version of the full information sheet here: Information Sheet