Have you ever experienced an eating disorder?

Take part in the Eating Disorders Genetics Initiative UK (EDGI UK)

By taking part, your experience and DNA could help us understand how eating disorders develop and contribute to discovering more effective treatments.

Sign up to EDGI

About EDGI UK:

The Eating Disorders Genetics Initiative UK (EDGI UK) aims to better understand the role that genes and environment play in the development of eating disorders. The more we understand these illnesses, the more we can help people who are experiencing them.

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This information will help future researchers and clinicians develop and deliver more effective treatments.

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Our aim is to collect the psychological, medical, and genetic information of 10,000 people with experience of any eating disorder.

Building DNA
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When my therapist told me about EDGI UK and gave me a leaflet, I felt a spark of hope. Joining the study was my way of helping others, especially teenagers, feel less alone and understand that there is help available."

Emma Louise James

You do not have to:

  • Have received treatment or a diagnosis to take part
  • Tell your healthcare or insurance provider (all your information is strictly confidential)
Am I Eligible?

To take part in the Eating Disorders Genetics Initiative, part of the NIHR BioResource, you must:

  • Have experienced, or have been diagnosed with an eating disorder
  • Be aged 16 and above
  • Live in England
Rachel Egan
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We need research projects like EDGI UK to help us develop better treatments so that more people can go on to recover and experience life again, like I did."

Rachel Egan

How do I take part in EDGI?

  • 1
    Register on the EDGI UK website
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  • 2
    Read the information sheet and provide consent
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  • 3
    Complete a 30 minute questionnaire
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  • 4
    Complete your DNA saliva kit (for genetics research) and return it to us in the free envelope provided

EDGI UK is delivered in partnership with:

  • Kings College London
  • NIHR/NBR
  • Beat
  • South London and Maudsley NHS Foundation Trust
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International Sites

EDGI UK is proud to be part of an international collaboration with other EDGI projects around the world. Together, we hope to have 40,000 participants take part in the world’s largest eating disorders genetics project!

If you live in any of the countries below, you can sign up to take part in eating disorder research. Please note, you must live in the country where you are taking part (i.e. you can only take part in EDGI USA if you live in the USA).

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Sign up TO EDGI UK, part of the NIHR BioResource

Developed in collaboration with Beat, the UK’s eating disorder charity, and with patients and service users.

If you are younger than 16 and interested in taking part, please contact the EDGI UK team at edgi@kcl.ac.uk.

You can withdraw from the study at any time.

Already have an account? Login or Recover Password

To begin signing up you just need to provide your name, phone number, email address, sex, gender, and a password. You will be sent a notification email to verify your email so that we have the best way of contacting you.

After this, the EDGI UK enrolment process consists of four steps:

  • Reading the Information Sheet
  • Providing consent
  • Completing our questionnaire
  • Providing a saliva sample
Talk to us

Please be aware that phone calls go straight to voicemail. We recommend emailing for a faster response.

Our Office hours are:
Monday to Friday 9:00am to 5:00pm

Please note that we will not be able to call you back if the number provided is not a UK based telephone number

Need any help?

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