About the Eating Disorders Genetics Initiative (EDGI)
What is EDGI?
The Eating Disorders Genetics Initiative (EDGI) is the UK’s largest ever research project on eating disorders. Our aim is to collect the psychological, medical, and genetic information of 10,000 people with experience of any eating disorder. This will help us to better understand the role both our genes and environment play in the development of these illnesses. A deeper understanding of eating disorders means we will be better equipped to help those who are experiencing them. EDGI UK is part of an international collaboration, with many countries coming together as part of the same initiative. For too long, eating disorders have been stigmatised by society, underrepresented in mental health research, and overlooked by research funding bodies. Together with your help, we want to change this. Help make a difference by signing up to EDGI UK today.
What makes EDGI UK unique?
With joining EDGI UK, you consent to join the National Institute for Health and Care Research (NIHR) BioResource, a large panel made up of over 200,000 volunteers across England who have consented to let the BioResource team have access to their health-related records, clinical and biological data to help further research. Your participation in EDGI UK will be a valuable resource to advance research in not only eating disorders, but to all other mental and physical health conditions as well. Your contribution goes a long way.
In EDGI, we include all eating disorders so that no eating disorder is left unexplored. Our research shall benefit current and future patients and service users, regardless of which eating disorder they may be experiencing.
Can I take part in EDGI?
You can take part in EDGI if you:
- Have ever experienced or are experiencing any eating disorder
- Are 16 or over
- Live in England
Who runs EDGI?
EDGI UK is led by the NIHR Mental Health BioResource (part of the NIHR BioResource), researchers at King’s College London and is in collaboration with Beat, the UK’s eating disorder charity.
How do I take part in EDGI?
- 1
- Register on the EDGI UK website
- 2
- Read the information sheet and provide consent
- 3
- Complete a 30 minute questionnaire
- 4
- Complete your DNA saliva kit (for genetics research) and return it to us in the free envelope provided.
Need more information?
Please see our Information Sheet or visit our FAQ page. If you have further questions about EDGI or would like to speak to a member of our team, you can contact us by email at edgi@kcl.ac.uk or by calling us on our freephone number 08009176016. You can find our contact details here. Please leave us a message via phone, email, or our “Send a Message” form and our team will get back to you.
Who we are
EDGI UK is a collaborative effort between King’s College London, the National Institute for Health and Care Research (NIHR) BioResource and Beat, the UK’s eating disorder charity. For more information on each organisation, please read below or visit their webpages.
NIHR BioResource
The National Institute for Health and Care Research (NIHR) BioResource is a group of re-contactable volunteers who are willing to be approached to take part in research studies. To date, 150,000 volunteers have donated biological samples and allowed secure access to their medical records and clinical information for research purposes. This enables research to occur at a quicker rate so that we can better understand both physical and mental health conditions and discover new treatment options. Throughout England, there are 13 NIHR BioResource and Clinical Research Facilities. EDGI UK is funded and supported by the NIHR BioResource.
NIHR BioResource Centre Maudsley at King’s College London
The NIHR BioResource Centre Maudsley is focussed on mental health research as part of the NIHR BioResource. The centre supports a large range of mental health studies to recruit new participants into the NIHR BioResource, and also leads EDGI UK which is the UK’s largest eating disorder research study. They also run the world’s largest genetic study into anxiety and depression called the Genetic Links to Anxiety and Depression (GLAD) study aiming to recruit 40,000 individuals with anxiety and/or depression.
BEAT
We at EDGI UK have partnered with Beat, the UK’s eating disorder charity, which “exists to end the pain and suffering caused by eating disorders.” Beat works directly with people with lived experience of eating disorders and their families. Beat works tirelessly to highlight the challenges of those affected and campaigns for change. For more information on Beat and its support services, please visit the Beat webpage or our dedicated page to Beat in our resources section.
Our team
- Professor Gerome Breen,
Scientific LeadGerome is the Chief Investigator of EDGI and Professor of Psychiatric Genetics at the Social, Genetic, and Developmental Psychiatry centre. His primary research interests are in the biological basis of common mental health disorders using both bioinformatic and laboratory genomics to find ways to improve how we treat eating disorders and affective (mood) disorders. He is overall lead of the NIHR BioResource Centre Maudsley and the NIHR Mental Health BioResource. He also heads a biobanking and genomics/biomarker core facility laboratory that facilitates numerous genetic studies investigating the influence of genes on mental and physical health.
- Professor Janet Treasure,
Clinical LeadJanet is Professor of Psychiatry at King’s College London and the Clinical Lead for eating disorders at South London and Maudsley (SLaM) NHS Foundation Trust. After completing her PhD in 1975, she achieved her MBBS in 1978 and has since gained an MRCP, MRCPsych, FRCP and FRCPsych. She has received many awards throughout her career for her work with eating disorders, including an Order of the British Empire (OBE).
- Dr Gursharan Kalsi,
Manager of NIHR MaudsleyGursharan is the manager at the NIHR BioResource Centre Maudsley. She has been involved in mental health research for several years, working in the UK and the USA. She is interested in the overlap between the various mental health disorders and their common and distinct pathways at the molecular level. She is also interested in mental health in minoritised ethnic groups.
- Dr Hubertus Himmerich,
Clinical Psychiatry LeadHubertus (he/him) is an Honorary Consultant Psychiatrist at the South London and Maudsley NHS Foundation Trust (SLaM) and a Reader in Eating Disorders at King’s College London. His primary research interests are psychoimmunology, psychopharmacology and the therapeutic use of music.
- Dr Karina Allen,
Consultant Clinical PsychologistKarina is a Consultant Clinical Psychologist at the South London and Maudsley NHS Foundation Trust (SLaM) Eating Disorder Service and a Visiting Senior Lecturer at King’s College London. She has worked in the field of eating disorders for almost 20 years, holding academic and clinical roles in Australia and the UK. She has been heavily involved in the England-wide roll-out of First Episode Rapid Early Intervention for Eating Disorders (FREED) and training in the Maudsley Anorexia Nervosa Treatment for Adults (MANTRA). Karina is co-principal investigator of the MRC / UKRI funded Eating Disorders Clinical Research Network, alongside Professor Gerome Breen.
- Tom Quinn,
Director of External Affairs at BeatTom has worked at Beat, the UK's eating disorder charity, for almost 4 years, where he is currently the Director of External Affairs. EDGI works in collaboration with Beat, whose mission is to end the pain and suffering caused by eating disorders.
- Anna Carnegie,
Coordinator for the EDCRN projectAnna Carnegie (she/her) is the Coordinator for the EDCRN project at KCL. She holds a Bachelor's degree in Social Science (Social Work) and a Masters degree in Public Policy, both from University College Dublin. Anna joins the EDCRN project with over 10 years experience in research coordination, management and stakeholder involvement. She has a particular interest in coproduction and ensuring that the voices of experts by experience are heard in the research process.