Terms and Conditions

“King’s” means King’s College London, a university with charitable status, established under royal charter and having its registered office at Strand, London WC2R 2LS, United Kingdom;

By accessing this website you accept and agree to the following terms and conditions:

King’s gives no warranty as to the accuracy of the information or guidance for any specific purpose. The information and guidance contained on the website does not constitute legal or professional advice. All implied warranties and conditions are excluded, to the maximum extent permitted by law.

King’s is in no way responsible or liable for any damage or loss whatsoever arising from viewing or downloading information from this website and from the use of, or reliance on, the information and guidance on this website, although this does not affect claims in respect of death or personal injury caused by negligence.

Any links to third parties websites are provided for convenience only. King’s has no control over such websites and accepts no liability for their content.

King’s reserves the right at all times to vary, change, alter, amend or remove any of these terms. By browsing the website you accept that you are bound by the current terms and conditions and notices, and we therefore recommend that you check these each time you revisit the site.

You must not use this website, and/or any interactive facilities which are available through it to:

commit or encourage unlawful acts or in breach of these terms of use;
misrepresent your identity;
hack, or attempt to hack, any part of the website or any system used to run it;
store personal data derived from the website;
post material that is obscene, offensive, or otherwise unlawful;
technically harm the website and/or its systems (including, without limitation, computer viruses or malicious software or harmful data)

While King’s tries to make this website available 24 hours a day, it reserves the right to suspend or withdraw access, without notice, to either the whole or part of the website, for any reason.

Copyright

In no event shall any user of this website use the name or logo of King’s College London or any of its trademarks, other than with the express written consent of an authorised representative of King’s College London.

Confidentiality and Data Protection

The data you provide will be kept strictly confidential and will only be used for scientific research purposes. All personal information will be saved on encrypted file servers behind secure firewalls at King’s College London and NIHR BioResource central databases. Anyone working with your data has a legal obligation to keep personal information confidential and has received training on the new General Data Protection Regulation policy (GDPR,2018). You can learn more about GDPR here. King’s College London adheres to their Privacy Policy, which you can read more about here.

We will only collect and store data that is essential to the project and with participants’ consent. Participants will have the right to access, restrict, withdraw, and be informed about the data they have provided. If a participant wishes to withdraw from the study, we will delete their data but may keep a record of the withdrawal. Data will be stored for as long as it proves beneficial for research into health.

Your saliva sample will be used to extract DNA which will be analysed for genetic information and stored in a secure laboratory at the National Biosample Centre, the laboratory facilities of the NIHR BioResource. Samples will be labelled with a unique ID number which will be the only link between your personal information and de-identified data (e.g. genetic data, questionnaire data). The link between this ID and your personal data will only be available to authorised individuals who have been trained in data protection.

Access to the data will be managed by the EDGI team and the NIHR BioResource, who will control permission to use the data. Access to data may be made available to other scientists under strict and confidential legal data-sharing agreements. Researchers share the results of their studies by means of reports or scientific publications, which includes placing information/data on the internet, in press articles, in project leaflets and through other media. However, your personal information will never be disclosed in such reports.

Complaints

Any complaint made about any material available on the Eating Disorders Genetics Initiative website or information relating to the study contained on external Internet sites will be addressed as soon as possible.

To inform us of a complaint please contact us.

These terms and condition represent the entire agreement between the parties in regard to the use of the website. King’s in its sole discretion is entitled to alter or amend the website and the terms and conditions without notice. Information contained on the website may be subject to conditions and/or disclaimers as indicated. English law governs these terms and your use of this website and you submit to the non-exclusive jurisdiction of the English courts.