FAQs

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  • What is the Eating Disorders Genetics Initiative (EDGI) UK?
  • Am I eligible to take part?
  • How will you use the survey, biological, and genetic information data I give you?
  • What research has been published using data from EDGI UK?
  • How do genetics and the environment influence the development of eating disorders?
  • Should I still send back my saliva sample if I am feeling unwell?
  • How is the information I give you kept confidential?
  • Will commercial companies be accessing my data?
  • Medical records
  • What is the NIHR BioResource?
  • What other studies might I be invited to take part in?
  • My Account/Personal details
  • NHS number
  • My Sign-up
  • My genetic data
  • Do I have to disclose my participation to my life insurer?
  • I am a journalist or represent an organisation who wants to learn more about the study or to help with the study. Who can I contact?
  • I have signed up and completed all 4 steps in EDGI. Is there anything more I can do to contribute?
Am I Eligible?

To take part in the Eating Disorders Genetics Initiative, part of the NIHR BioResource, you must:

  • Have experienced, or have been diagnosed with an eating disorder
  • Be aged 16 and above
  • Live in England

Sign up TO EDGI UK, part of the NIHR BioResource

Developed in collaboration with Beat, the UK’s eating disorder charity, and with patients and service users.

If you are younger than 16 and interested in taking part, please contact the EDGI UK team at edgi@kcl.ac.uk.

You can withdraw from the study at any time.

Already have an account? Login or Recover Password

The EDGI UK enrolment process consists of four steps:

  • Reading the Information Sheet
  • Providing consent
  • Completing our questionnaire
  • Providing a saliva sample
Talk to us

Please be aware that phone calls go straight to voicemail. We recommend emailing for a faster response.

Our Office hours are:
Monday to Friday 9:00am to 5:00pm

Please note that we will not be able to call you back if the number provided is not a UK based telephone number

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