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Confidentiality
- How is the information I give you kept confidential?
- Personal data
- Biological samples and genetic data
Useful links for more information about use of personal and biological data
The Data Protection Act (2018) is a UK law which was put in place to ensure the protection of people's data privacy. It also gives people the rights to access any information held about them, have it erased and object to its processing.
If you provide the EDGI UK Study team with a saliva sample, your biological sample is protected by the Human Tissue Act 2004. The Act regulates the removal, storage and use of human tissue and ensures all samples are collected appropriately.
- What is UK Longitudinal Linkage Collaboration (UK LLC)?
- How does this work?
- Linked data owners
- Where and how is EDGI UK data stored at UK LLC?
- Can I find out if EDGI UK data held in the UK LLC Trusted Research environment has been approved for a research project?
UK Longitudinal Linkage Collaboration (UK LLC)
A new way of working with longitudinal data is by combining data from many Longitudinal Population Studies to allow researchers to look at more people across diverse population groups, occupations and other factors to improve health and wellbeing and service provision. To do this, many studies need to put relevant data into a highly secure computing environment, known as either a Trusted Research Environment (TRE) or a Safe Data Haven (SDH) or a Secure Data Environment (SDE).
The EDGI UK Study is a partner with UK Longitudinal Linkage Collaboration (UK LLC), a Trusted Research Environment set up to bring data together for research in the public good.