Confidentiality

Node Map
  • What is the UK Longitudinal Linkage Collaboration?
  • What does this mean for EDGI UK?
  • What will the LLC investigate?
  • What data will EDGI UK deposit into the LLC?
  • What are my rights?
  • Data Access and Control within the LLC
LLC Logo
  • How is the information I give you kept confidential?
  • Personal data
  • Biological samples and genetic data

Useful links for more information about use of personal and biological data

The EU General Data Protection Regulation (GDPR)

The General Data Protection Regulation is an EU Regulation which was put in place to ensure the protection of all EU citizens' data privacy. It also gives people the rights to access any information held about them.

Human Tissue Act 2004

If you provide the EDGI UK team with a saliva sample, your biological sample is protected by the Human Tissue Act 2004. The Act regulates the removal, storage and use of human tissue and ensures all samples are collected appropriately.

Am I Eligible?

To take part in the Eating Disorders Genetics Initiative, part of the NIHR BioResource, you must:

  • Have experienced, or have been diagnosed with an eating disorder
  • Be aged 16 and above
  • Live in England

Sign up TO EDGI UK, part of the NIHR BioResource

Developed in collaboration with Beat, the UK’s eating disorder charity, and with patients and service users.

If you are younger than 16 and interested in taking part, please contact the EDGI UK team at edgi@kcl.ac.uk.

You can withdraw from the study at any time.

Already have an account? Login or Recover Password

The EDGI UK enrolment process consists of four steps:

  • Reading the Information Sheet
  • Providing consent
  • Completing our questionnaire
  • Providing a saliva sample
Talk to us

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Our Office hours are:
Monday to Friday 9:00am to 5:00pm

Please note that we will not be able to call you back if the number provided is not a UK based telephone number

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