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Confidentiality
- What is the UK Longitudinal Linkage Collaboration?
- What does this mean for EDGI UK?
- What will the LLC investigate?
- What data will EDGI UK deposit into the LLC?
- What are my rights?
- Data Access and Control within the LLC
- How is the information I give you kept confidential?
- Personal data
- Biological samples and genetic data
Useful links for more information about use of personal and biological data
The EU General Data Protection Regulation (GDPR)
The General Data Protection Regulation is an EU Regulation which was put in place to ensure the protection of all EU citizens’ data privacy. It also gives people the rights to access any information held about them.
If you provide the EDGI UK team with a saliva sample, your biological sample is protected by the Human Tissue Act 2004. The Act regulates the removal, storage and use of human tissue and ensures all samples are collected appropriately.